The Bridget Jones of dieting and yam-yams.

8 days. 8 days of antibiotics and 8 days of eating clean. Supposedly.

I’m happy to say that I have only missed one dose of my antibiotics. Not happy because I’m intoxicating my lovely gut with these drugs and a missed dose means a health break for my insides. No, happy that with the chaos of moving out, I have managed to remember to take them so often. It helps that Mr B is on board and I get the odd gentle reminder to get my ass of the sofa at night and take them. If I’m going to trial this antibiotics thing, I’ve got to do it 100% otherwise, what is the point?

My update on the antibiotics…well, I have still got the unmentionable going on in (and then swiftly out of) my stomach, although it is only happening once a day, so it’s bearable.  I have no gouty symptoms anymore, but what I do have is overwhelming tiredness. Like the type you get when having a flare (or a hangover). Just ridiculous I’m-gonna-lie-down-right-here-on-the-tiles type tiredness. Tiredness that makes my fuse reaaaaally short. The same as when you’re horomonal. That kind of tiredness. I’m hoping it’s yet another one of those symptoms that will gradually fade away, but until then I am having to be extra kind to myself, in order to achieve anything. Otherwise my Inner Perfectionist (she lives on the opposite side to my Inner Hypochondriac) keeps getting really cross that I am not getting my chores done, efficiently or at done all in some cases. I’m ignoring her and the Hypochondriac. Let them battle it out together. I’m just too tired to listen to either of them.

A new side-effect is yam-yams. This term may not be a familiar term to you, but you’ll see it makes true, onomatopoeic sense. Have you ever had a dry mouth from surgery, or from taking medication? When you are so dehydrated , your mouth feels like the inside of Ghandi’s flip-flop, in the desert, after he’s walked a few hundred miles? Well, yam-yams is the sound your mouth makes when you try to rehydrate it without actually drinking. When you suck your tongue and open and shut your mouth. Yam, yam, yam. This is what I have. Constantly. Despite drinking a fish pond of fluids daily. Still, I won’t die (really, Inner Hypochondriac, I really won’t.)

Then there’s my diet. Hmmm. I am mostly doing good. Lots of beautiful meals, but little creativity going on. Roast chicken or pork. Roasted vegetables. Pan-fried fish. Sautéed courgettes, garlic and onions. Roasted sweet potatoes. In cubes. In wedges. In bigger chunks. Lots of smooth coconut oil, lavished all over everything I cook. Lots of raw coconut. Tinned fish. Sauerkraut. No grains, bread, pasta, sweets, processed food.  Ok, no processed foods apart from two or three. Dried apricots and wine. And a little cheese. I had one glass of beautiful, high-quality, red wine at a Wine and Cheese party Saturday night. You would think that I would have learnt my lesson after nearly dying the day before of all the side effects of my meds; instead I ignored the potential cirrhosis of the liver and sipped a lovely glass of Burgundy.

I am Bridget Jones. Of the diet world. I make poor choices, repeatedly.

To be fair, the wine didn’t cause me to flare, neither did the raw milk cheese, called Langres (delicious by the way and from a beautiful little Fromagerie, where 95% of their stock is cheese made from raw milk). Maybe this lulled me into a false sense of security.Then came the dried apricots….

Yesterday, I was baking for Ty’s school fair. My Sugar Dragon was mocking me, as it always does when I’m baking. How tough is it to wash your hands every time a bit of chocolate or cake mix touches your fingers? To put the dark chocolate-smeared spoon straight in the dishwasher, fighting every instinct to put it in your mouth?? So, I caved and had a few apricots. No big deal, I thought, I’m on killer antibiotics, so it should be all right…

WRONG! The apricots have the highest fructose content of anything in the house (apart from the dried figs – thank goodness I didn’t see those!). Fructose and anything high sugar causes me to flare. In fact there is so much fructose in those little, seemingly harmless, gooey balls of organic, dried fruit, that I would probably have been better off licking the dark chocolate off the spoon.

So, take antibiotics if you want. Or don’t, it really is an individual choice that may even change over time. However, if you are going to make one personal choice that helps you to heal, try to cut out the sugar. It does seem that sugar, along with heat and humidity, really does affect so many people’s Hidradenitis Suppurativa. It is not that easy, especially if you live with others who happen to exist in a world where school fairs demand cakes. Especially if you continue to feed your inner Sugar Dragon, instead of slaying it. But it is definitely worth it in the end.

Today’s conclusion. An autoimmune protocol diet (with no added sugar) definitely works and hopefully Bridget Jones will learn to accept this very soon.

Day 8 and the jury is still out on the antibiotics. Now, where did I put my pint of water? Yam, yam, yam……

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Diet? What diet??

I am broken.

My holiday is finished and my HS is having the time of its life. For those of you who are using diet to control your HS – well done. Stick with it – it really does work. I have eaten potatoes, crisps, sugary desserts; I have drunk many different types of alcohol – one too many cocktails. I have eaten bread, had gravy and just thrown caution to the wind. I’m paying for it now.

I was definitely allowed the mackerel, rocket and the flowers. Don’t ask about the rest…

Whilst away, I didn’t get my usual 8 hours sleep as Nina woke up every morning between 6:00 and 7:00. I didn’t stick to my diet. I lived on painkillers. I spent lots of time with friends and family. I had an amazing time.

Strawberries are Paleo, right?

I must admit that I’m feeling pretty rough right now, though. Not only are there post-holiday blues to contend with, but I am almost back to where I started diet-wise. I have a lot of admiration for those who can stick to the diet whilst away.

I definitely wasn’t the one laughing last….

Perhaps if I hadn’t had so many different things planned and so many dinners out, I could have made more of a concerted effort to eat better. Perhaps not. Perhaps I’m just not ready to admit that I can control this disease, by limiting the foods I eat. Although it is apparent, now more than ever, that my HS is definitely affected by my food intake. I did learn that it seemed to be at its worst when I had a combination of gluten and sugar. The occasional glass of good wine didn’t affect me too badly before, but a combination of apple crumble and rum cocktails induced a major flare.

It’s probably a good time to mention that I have been on the homeopathic treatment, Serocytol, for three months. I have been taking a combination of four different drops: SRE, Neuro-vasculaire, Malphigien and Emonctoires. I started taking them the week after I started the AI protocol diet, so when my symptoms improved, I was not sure if the Serocytol had had an effect. However, after the last couple of weeks of free-eating, and the return of the bad-boy flares, I am 100% sure that they haven’t worked for me. I should go back to the homeopath and try something new. I really should. Soon. Not now, but soon.

So, its back to reality. Now, if I could just find where I left my motivation before I went on holiday…..

Home sweet home.

We’re home!

I made it through and did not run out of salad, nor starve. I had a lovely time, although I did spend an inordinate amount of it preparing salad for seven people every meal!

Serving up my famous roasted sweet potatoes, grated ginger, cumin and garlic…

I did cheat a little, but I didn’t suffer too badly. I definitely felt the effects of having some wine and cheese, with the inflammation getting quite bad towards the end. Everybody was super accommodating and I really didn’t feel like my diet had too much of an impact on anyone else, which was a relief.

A little reading break at the Beach Library…
Definitely not wearing my bikini in this one!

The weather was crappy and the boys only got to surf a few times. It was so cold, that there were no bikini moments – another thing I was dreading! I had bought a lovely pair of bikini surf style, short shorts for the occasion, so that I could wear bikini bottoms underneath with all my dressings, too. I know when the time comes, I’ll still be paranoid about wearing a tight fitting pair of shorts. C’est la vie!

When everyone had ice cream, Nina and I had sorbet, which was delicious. I really savoured those junk food moments, knowing that it would all have to be very worth it for the consequences that would follow!

We had to have the apartment clean, sheets laundered and be out by 10 am Sunday morning, so thought it would be easier to clean up Saturday and spend the last night at our place – just an hour’s drive from the apartment and on the way home for the others. We packed up, cleaned up and Mr B and I headed home with the bubba, whilst Ty and the others spent a few hours at the lake.

Our holiday roomie, Elliot – what a beauty!

We got a BBQ on the go and finished up with plenty of good wine. A plus for me was that I had everything unpacked, put away, washing on and all back to normal by Saturday evening – a day earlier than expected.

Back in the tiny kitchen, marinating the pork chops for the Barbie.

So overall, it went well. I had to resort to painkillers by the end of the week, but only in the evening before bed. I had one incident of a little stomach distress, after treating myself to some 85% Lindt chocolate. Another downside to avoiding certain foods, is that your body quickly develops an all round intolerance to them. From having an iron stomach for my whole life, I am now lactose intolerant. I did eat nearly the whole bar of chocolate, so perhaps I went just a little overboard…

Now I must prepare for my little trip to UK.  I fly out Tuesday with the wee one, so I need to get myself ready for holiday part deux….

All images © 2013 Leila Bodros. Not to be used, copied or redistributed without express permission from Leila Bodros.

 

Zero pressure = increased motivation.

Hangover. Day 3.

Wow. This is not good. How did I used to suffer this pain all the time? I am 3 days into recovery from my ‘binge’ on Saturday and my HS is horrible! I have new spots, pain and all over discomfort. It hurts to sit down again – well, it always hurts a little to sit down, but right now? Horrible! I am taking paracetamol again – just one in the morning and one at night to help me sleep. I am having to completely strap all my wounds up, to stop the pain that I am getting from the chaffing. there are so many unmentionable side effects from a flare, I am just going to stop right now!

Monday was a complete right off. Now that was due to the wine hangover. When did it get so hard to overcome a night of drinking? I guess I didn’t feel so bad Sunday, because I was still buzzing a little from the lovely evening we’d had the night before, but Monday was a different story. I was tired, in pain and just one thing after another went wrong – I even locked myself out and had to break in by climbing through the neighbours’ gardens – not an easy feat when you are suffering a big HS flare!

The good news is I’m coming out of it though and I know it will get better than this. Before, a flare like this would have really gotten me down, as I would have had no clue as to how to reduce the pain again.   I wouldn’t say I feel completely in control, but at least I know that by staying on the right food path, the inflammation will slowly subside. Even though I am moaning now, I know that the reality is that this pain could be 100% worse right now. My ‘golf ball’ has not swollen back up to a golf ball since I started the AI diet. All the HS spots I have right now have done a complete cycle over the last three days and at the risk of sounding icky (which we always do with this disease!), all are leaking nicely!

So it’s been a tough couple of days, but I am still feeling positive. The worst thing I can do is start thinking about what I haven’t/can’t do when I’m in pain. This morning I put zero pressure on myself to achieve anything and it worked; no expectations for me =  increased motivation. In the end, I managed to bake bread for the rest of the family (which always makes you feel like you’ve achieved something doesn’t it?) and ended up doing a lot of washing and housework – success!

As far as the diet goes, I am pretty keen to start reintroducing foods in a controlled way soon. I hope I don’t trip myself up again and manage to stay on the right path!

Good food, good wine, good cheese. Hangover.

Hangover Day.

I had a fabulous evening with friends last night. It was a perfect end to a not so perfect week. Last night I ate most everything I am not supposed to, and I thoroughly enjoyed it. It was a conscious choice and almost certainly swayed by the fact I was having a flare up anyway – what’s a couple more days pain once you’re in it?

I have three suspects on my flare list. Number one – gluten. Straight forward, right? You’d think so. But it was an accident. I was making pasta for the kids – they don’t always eat everything I do – and I cooked the carrots in with the pasta. When I dished up, I absent-mindedly ate a few of the carrots. Oh. There’s gluten in the water and probably soaked all the way into my otherwise innocent carrots. What an idiot. So, instead of having a lovely piece of homemade flatbread with garlic infused olive oil and parsley, the olive oil dripping down my chin, whilst I savour the moist, hot, doughy piece of heaven….I got carrots. Idiot.

Number two: Lady’s time of the month. Boo. ‘Nuff said.

Number three: Walnuts. A conscious decision to have walnuts, as I had already started to flare from either Suspect One or Suspect Two. Ed made an amazing dinner of organic chicken breast, filled with pesto, with a side of sautéed cabbage and paris mushrooms. The pesto recipe came from my Well Fed cookbook and it happened to include walnuts. It was delicious. Walnuts may not have been the culprit, but as I was on a downward spiral already, who knows?

So there we go. By last night, I had already flared up pretty bad. My decision to slowly reintroduce foods was thwarted again, by an accidental ingestion of gluten, damn hormones and well, a slippery slope from there. So, last night we had this:

An appetiser of julienne cut raw carrots and radishes, with a creme fraiche and chive dip (I didn’t have dip). Then I made the aforementioned flatbread, dripping with roasted garlic infused olive oil and parsley, cooked on a pizza stone ( I had a bit of this – first time I’ve had flour in three months).

For main we had marinated a huge rump steak in olive oil, salt and pepper in the morning and left it all day. The same with two duck breasts, skin on. We also had pork strips, just ‘nature’. Just an hour or so before dinner, we squeezed the juice of a Sanguinello orange (blood orange) into the duck marinade.

These were cooked on our BBQ and seared with a salad of rocket, iceberg lettuce, thinly sliced fennel, sliced radish and diced cucumber, with a Sanguinello, lemon and oil dressing. The combination of all the meats and the salad, especially with the citrus dressing was amazing! I probably enjoyed this food the most, despite the other food indulgences. There’s nothing quite like grilled meat with an amazing salad.

My other downfall. Wine and pudding. Ty had made an amazing apple crumble and once I started tucking into this, I helped myself to quite a bit! It was probably nothing compared to the portions I would have had before, but I guess there is no such thing as a ‘good’ sized portion of flour, butter and sugar! We drank 3 bottles of quality red wine and finished off with some organic Brie and Tommes cheese. Heaven.

I woke up at 4.30 am in a bit of stomach distress and with a headache. I had one (usually prohibited) ibuprofen, lots of water and went back to bed.

So, here it is. Hangover Day. But this morning I feel good. I had a great night. I didn’t beat myself up about what I ate and today all I am craving is salad. I am not in hideous pain (yet!) I hope I stay on course and that my flares go as quickly as they came. Roll on beautiful Sunday!